I’m Running for Deavon’s Heart

Countdown to 1st Race (San Francisco RnR 1/2)

% of Goal Met

Camp del Corazon Logo

If I raise $725 per race I run, I will most definitely hit my goal. Please be a part of this opportunity to help others!

$105 of $725 Goal Race #1
14.4%

Deavon’s Heart

Picture of Deavon and his dog at a American Heart Association event
Deavon and little Millie at the American Heart Association’s Annual Heartwalk

My step-son Deavon was born with Tetrology of Fallot (ToF), a rare heart condition characterized by four heart defects present at birth. To date he has had over a half-dozen invasive heart surgeries and dozens of procedures to improve his quality of life and heart function. He’s a survivor and inspiration to his family and friends.

Learning the camera and cinematography
Learning the camera and cinematography

As a first year college student, Deavon has hopes and dreams of writing and directing his own films and working in the entertainment industry to tell stories. And He has many stories to tell. He looks up to creatives like Martin Scorcese and Steven Spielberg and really believes stories have the power to change the world.

Life-Changing Experiences at Camp del Corazon

Picture of Deavon and mom just before shipping out to camp
Deavon and mom – Sept 2017 before heading out to camp!

Camp del Corazon is a spring of positivity and inspiration to those coping and accepting of conditions as children. Annually, for 1 week, kids and teenagers from across the country with similar heart conditions and defects, gather on Catalina Island along with doctors, nurses, and camp counselors (who all go by really cool codenames like ‘Big Kahuna’, ‘Shrek’, ‘Hollywood’, and ‘Heavy D’) to just go be normal kids. Each year he’s returned from camp loaded with countless stories, emotions, jokes, songs, camp cheers, and dances that filled his heart and ours.

I’m going to run to make sure we can keep this good stuff going!

Deavon, mom, Dad completing a 5k!
We completed a 5k together!

I am so thankful for the influence that these volunteers and this organization has had on my step son–and that is why I am running and raising funds. I’m aiming to run at least 6 Half Marathons through Rock n’ Roll and 1 Ragnar Race by year’s end and would like to raise as much money for this charity as I can. If you’ve been touched or inspired by Deavon’s story or other similar stories (such as Jimmy Kimmel’s whose son also has ToF), please consider donating to Camp del Corazon through this donation page. All proceeds go directly to them. (Don’t worry, I’ve already paid my fees for all the runs — let’s get them the money they need to keep this important program strong and running!) 

Jay’s Race Schedule 🏃‍♂️

  • April 7: San Francisco Rock n’ Roll 1/2 Marathon
  • April 12-13: Ragnar So Cal 2019 (Run to San Diego!)
  • June 2: San Diego Rock n’ Roll 1/2 Marathon
  • June 9: Seattle Rock n’ Roll 1/2 Marathon
  • September 15: Philadelphia Rock n’ Roll 1/2 Marathon
  • October 6: San Jose Rock n’ Roll 1/2 Marathon
  • November 17: Las Vegas Rock n’ Roll 1/2 Marathon

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